tag:blogger.com,1999:blog-5267126802600758697.post9105410623949680416..comments2023-06-19T03:58:02.968-04:00Comments on Lingual Nerve Injury: Where does it hurt?Janehttp://www.blogger.com/profile/07759804883488167297noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-5267126802600758697.post-9586364131629217512010-08-31T02:02:57.383-04:002010-08-31T02:02:57.383-04:00what an idiot. all pain is inflammatory. neuropath...what an idiot. all pain is inflammatory. neuropathic pain is inflammatory. part of the process includes a "soup" of inflammatory markers which float around in the system making things worse. medicine has not found a drug which can address 100% of the "soup" to shut off the pain signals. your doctor is giving you a teaspoon (Mobic Rx) to work from a very large bowl of soup (nerve injury). what a dope.<br /><br />Neublastin won't be here for a long time. it's still in clinical trials. <br /><br />i hope this med gives you some relief; my fear for you is your pain is going to worsen. if this happens, contact the doctor right away and tell him, "This medication is inappropriate. I need something for neuropathic pain immediately." <br /><br />good luck jane. by the way, i emailed you; did you ever get it?<br /><br />krittyUnknownhttps://www.blogger.com/profile/03197966251492750382noreply@blogger.comtag:blogger.com,1999:blog-5267126802600758697.post-12498516840101848822010-08-27T08:12:08.764-04:002010-08-27T08:12:08.764-04:00Pain doc yesterday, report: wants me off gabapenti...Pain doc yesterday, report: wants me off gabapentin, wants me to do another 30-day round of Mobic anti-inflammatory (since the inflamation is likely what is causing the pain) and if that doesn't work, can always go back on gabapentin. Asked about Topamax, asked about Neublastin, got "no". <br />The whole visit took 2 minutes- I sat in the dr. office 4 hours - no lie. Our healthcare systems sucks. Our economy sucks. If I didn't have kids I'd move out of the US- seriously. OK, done with my rant for the day! Everybody have a good one!Janehttps://www.blogger.com/profile/07759804883488167297noreply@blogger.comtag:blogger.com,1999:blog-5267126802600758697.post-4877378830270291382010-08-24T02:01:59.216-04:002010-08-24T02:01:59.216-04:00okay this is weird...i am also having pain down th...okay this is weird...i am also having pain down the side of the neck with a growth under the skin. it is small but i can feel it. it is under my jawbone area where the jaw meets the neck. i'm going to my pcp tomorrow to have the usual rounds of scans where i suspect nothing will be found. maybe a round of steroids may help. <br /><br />UMass, while a decent school with a medical campus, is not helpful for speciality cases. you need to be in the city, and even boston is down to a few doctors for trigeminal pain.Unknownhttps://www.blogger.com/profile/03197966251492750382noreply@blogger.comtag:blogger.com,1999:blog-5267126802600758697.post-35105022883617510072010-08-22T22:05:04.485-04:002010-08-22T22:05:04.485-04:00K,
A few months ago I had pain down the side of my...K,<br />A few months ago I had pain down the side of my neck, too - there was and still is a "growth" there you can feel under the skin. Possibly unrelated but suspicious, like yours. I no longer have throat pain, but cannot raise my voice loudly or it hurts.<br /><br />I WISH I could afford to come to Boston, and thank you for the invite- I looked up Dr. Donoff @ Harvard - impressive resume. I have a cousin with connections at UMass, but she couldn't recommend anyone who specializes in this type of injury. I am very interested in hearing about your visit!!Janehttps://www.blogger.com/profile/07759804883488167297noreply@blogger.comtag:blogger.com,1999:blog-5267126802600758697.post-67767862261011760962010-08-22T21:05:23.065-04:002010-08-22T21:05:23.065-04:00jane, will you come to boston? i'm going to se...jane, will you come to boston? i'm going to see bruce donoff in 2 weeks. he's a trigeminal microsurgeon at mass general....highly acclaimed. repairs damaged trigeminal nerves due to a whole host of injuries including dental. it may be worth a consult for you. i'm going to talk with him about my own case to see if he can explain my mechanism of injury. i'll let you know what happens.<br /><br />still having neck pain. not throat, but the outside of the neck; the sternoclastoid muscle. not sure if it's related but it being on the same side, it's suspicious. what was your neck/throat pain like? did it subside for you?<br /><br />take care,<br /><br />krittyUnknownhttps://www.blogger.com/profile/01857014175356476208noreply@blogger.comtag:blogger.com,1999:blog-5267126802600758697.post-66000257453413366162010-08-22T06:58:22.246-04:002010-08-22T06:58:22.246-04:00Thank you for this advice - I will call him. Seems...Thank you for this advice - I will call him. Seems like all the specialists in this area are in San Fran! Well, I can't blame them, it's a great town. However, I have discussed my case and been turned down by 6 atty's already. But as you can tell, I am not one to ever give up trying for something better, especially when I'm in pain every day.Janehttps://www.blogger.com/profile/07759804883488167297noreply@blogger.comtag:blogger.com,1999:blog-5267126802600758697.post-2342827368110241622010-08-22T02:57:58.414-04:002010-08-22T02:57:58.414-04:00You are messed up and you should contact Edwin Zin...You are messed up and you should contact Edwin Zinman DDS for a evaluation on your situation asap.Anonymousnoreply@blogger.com