As the days grow shorter, and the temperatures turn colder, I approach the one year mark of my injury (Dec 30th, 2009 - "a day that will live in infamy"). I have an all-over, nondescript burning sensation most hours of the day. Yep, it's really annoying, and distracting. I have to plan for meetings or any time I'll be away from my purse for awhile, which contains my stash of gums and lozenges, but sticking gum in my pocket, and carrying water.
No longer does just the tip or edge of my tongue burn; it's more widespread all along the left half of the tongue. I still have pain when puting on sunglasses. I still cannot rest my chin in my hand. But I can do lots of things I couldn't do before, like go to restaurants (where hypersensitivity to noise used to kill me), and walk outside even when the wind is blowing (whereas I used to have to pull a hood over my left ear and mouth). I've not had a migraine headache since summertime. So there's definitely been progress.
I'm very encouraged reading that Kev has completely recovered! He is one for the record books, and I will be driving him crazy picking his brain to understand how he managed to finally beat this thing.
The simple answer is, there are no simple answers. This thing takes time - lots of time. And ppppp... patience...something I am NOT known for. I continue taking B vitamins - do they help? Who knows? Couldn't hurt. I am still on meds - couldn't survive without them. I have stopped asking "why me" and "when will I feel normal again", and started just living. I try to notice when the pain is lessened, feel grateful for those rare moments, and burn them into my memory cells, in the hopes they'll someday win out over the pain receptors still firing off.
My thoughts go out to each of you this Thanksgiving. I am so thankful to have this blog and grateful you take the time to read and share your thoughts with me. Have a wonderful holiday!
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