Dear Kev- how'd it go with the pepper treatment? Any luck?
Dear Anonymous @ 11 weeks - I hear ya. I feel at this point as though I've plateaued and there won't be any more improvement after 8 months.
But you are still early on, relatively, in your healing after 11 weeks, and could still get slightly better. In all honesty I don't know if you'll ever be completely normal the way you used to be. I feel I won't.
re: depression, we've all been there; I hope following this blog helps to lighten your mood, there are some great people here with wonderful tips and suggestions. Hang in there - you are not alone! We get it!
I am still hoping someone will find this blog and post that they are *completely recovered* - how long it took, and what steps they took to get there. Meanwhile, if we keep putting our collective heads together, maybe we'll figure it out on our own.
Saw the neuro; again said topamax is really for migraines and wants to just increase the dosage of gabapentin and continue the clonazepam for burning. Result has been more sleepiness (though I can function) and still have burning.
He also used the TENS unit on my gums and I must say I do feel some relief in my cheek, though my teeth still ache and tongue always burns. He wants me to do a series of these treatments in next few weeks (not covered by insurance of course). I mentioned kritty's remark that seemed to spread the pain and make things worse, he just said "that shouldn't happen".
Dear Kristin - When landing in Chicago I was fine once on the ground. When back in Florida I had no landing trouble at all, really. Maybe it's the thin air we have at sea level.
Dear kritty- if you like write me at email@example.com for private messaging - your input is invaluable. I could use a referral to someone close to me. I'm obviously not getting the ultimate care available at present.
How's everyone doing this week? I am popping those lozenges and gum like M'n'Ms to try and douse the flames in my mouth.