...I'm almost afraid to say this out loud, I don't want to jinx it, but as soon as the uncontrollable fire came yesterday, it went away today. I woke up today feeling surprisingly well...as the day progressed, still good...hmmmm...even on into evening and - wow, this is really an improvement! Back down to rugburned feeling.
Like, I didn't even get relief yesterday after two whole 500 mg vicodin, .75 Klonopin, and a Cosmo cocktail for good measure (the last one suggested by my son, who I think was going to punch me if I said one more time "my mouth is on fire!" I don't drink much these days.) But today - I didn't have to take any of that; I did, because I am testing a theory. I took .25 Klonopin 3x spread out throughout the day, to see if having a stead stream of it would make a difference. But I couldn't tell because I was already having a good day anyway. Won't I feel silly if all this analysis and experimentation is a waste of time, because none of it has any effect anyway.
I did take 2 ibuprofen both yesterday and today for inflammation, which I don't usually take, as well as extra doses of the two homoepathic meds, plus brought back the Alipoic acid/acetyle pill (one), and added one Omega 3 to the mix. Too soon to tell if any of that could really have quenched the fire so randomly.
I am thinking less and less that particular foods (sugar) has anything to do with it, because on good day I can get away with a lot; on a bad day, NOTHING gives me relief, no matter how bland. But I do think caffeine, being a stimulant, is an obvious nerve trigger, so I do avoid that. Other than that, heck if I know!
Up too late again tonight, but at least this time it's not from the pain. 1/2 an ambien is in order.
It's curious how some are able to get meds to help deal with this while others are not. A friend of mine who is couple of years in received absolutely nothing! One OS shrugged his shoulders and said there was nothing he could give me. I did okay but I had to see a few first.
ReplyDeleteAlso wonder how the meds are chosen as they seem to be all over the map. I've heard good things about Klonopin. I wanted to try it at one time, does it help with the rug burn?
You seem to be on the same healing paths as me. I had loads of ups and downs at 5 months. I leveled out at about 7 and continue to make small improvements.
I have had the same experience with Dr.'s who shrug their shoulders (my dentist was the master at that). I had to go to a pain management specialist to get narcotic RX and it cost a bloody fortune for the visit, which they did not warn me of in advance. Klonopin helps for the acute burn, it can help make it a milder burn, but it does make you sleepy. I only take 1/2 a tab at a time.
ReplyDeleteIt is interesting you leveled out at about 7 months and your root canals stopped aching around the same time. Were the RC's on the same side as the injured nerve?
I should mention this is an off-label use of Klonopin, which I believe is supposed to be for anxiety, like a Xanax; but for some reason, it quiets the tongue burning temporarily.
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